Saturday, June 1, 2013



After a consultation with one of the top Vascular specialists in the US, I have been informed that my AV Fistula is a Gold Star, which means no additional surgeries at this time and LDL Apheresis treatment can begin...Several points that I have learned in regards to the AV fistula (I have named buzz) 

  • It's not going to break or weaken
  • The fistula can be reversed
  • The tightness that I feel in the upper and forearm is the fistula growing which in return puts additional pressure on the surrounding tissue
  • My fistula is about 1cm wide and is on the surface (usually in a thinner arm this is the case)
  • I can carry and lift and pull objects as long as it's comfortable
  • Cold weather it will constrict-hot weather expand
  • The brewee and thrill will become louder or more active with blood pressure changes and or strengthening or weakening of the Fistula itself
  • The fistula needs to be monitored usually with Apheresis treatment and routine ultra sounds
  • Surgery to tie off veins may or may not relief the discomfort
  • Because I am ambidextrous, biofeedback for nerve issues may be relevant
Buzz and I have started a new relationship, as I now feel that I have a better understanding of this entity in my body many thanks to the Doc that took the time with my husband I and shared what educational information that he is aware of for this rather new treatment in the  Cardiology world.

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