Monday, April 29, 2013



Met with my Vascular specialists today file folder in hand and a positive attitude.  He is a very gentle kind individual a personality that isn't to common in the cardiology world.  He listens, and I can hear myself listening, calming...He listened for over an hour and I think I forgot to say thank-you...I will need to send him out a card of thanks as a patient to a Doctor.

I believe he heard my concerns...and I remain hopeful that we can make a few needed changes for a healthier environment and treatment procedures for us patients hoping to experience a few more years of sunshine...more later, hubby just arrived home from work.

25. April. 2013 LDL Apheresis that didn't happen



First scheduled Apheresis treatment and everything is a go; schedule has been arranged, weather is clear and I feel ready.  Ready as any person facing a new medical treatment.  To begin with I had over scheduled myself in the morning, so I re-thought and prioritized to best prepare my mind and body.  I think this is a good thing to remember on treatment day so I re-focused by cooking a breakfast and lunch of calcium rich foods and a special care package for the afternoon.  I made the electrolyte potion with fresh oranges, orange rinds, honey, salt and water. A supply of calcium snacks-almonds and edamame then packed my briefcase with computer and periodicals.  I was ready to go.
After walking what feels like an eternity to the dark lit hallway on the 4th floor of the hospital I opened the door to the room only to find another technician and patient by the plasma machine about six feet from the  Aheresis  machine and the recliner style chair.  She explained that my RN would be just a minute and made all the polite introductions etc. that is common during a ladies social.  I really wasn't  feeling like exchanging lives and when faced in a nervous situation I have a tendency to over chatter….I did apologize and settled into my chair.
My RN explained a few procedural points while I read and signed hospital agreement forms and what knots.  She then began to insert the catheters into my virgin fistula-one in one to go!  Ouch…the next catheter didn't go so well and both RN’s pushed and turned trying to get the darn needle into the fistula…ouch, no go out that came pressure applied and another site was discussed and re-discussed and both RN’s determined it was the exact spot-same gig…nothing…Ouch now a clamp on the artery and a great deal of adjectives that describe a disappointing situation.  The only situation remotely compared to this treatment, might be an oil driller, tapping into the earth for the good stuff to bring wealth, although I am reaching for a different kind of wealth, the wealth of life…
Hubby applied Ice packs every fifteen minutes for seven hours which the RN had prescribed (as the treatment room only had ice chips placed inside a latex glove) since I didn't have enough energy to get up and down, feeling like an emotional, exhausted wet noodle.  Later that evening  a dear friend from a club I belong  to sent a card, a lovely card, filled with spring flowers and a note “just letting me know that she was thinking of me today”  and went on to express how difficult a year I have had…I cried for the first time in a very long time.